Showing posts with label informed consent. Show all posts
Showing posts with label informed consent. Show all posts

Thursday, June 25, 2026

‘Peppa Pig’ Causes AI Stink: Concern As Beloved Hasbro Series Asks Child Actors To Sign Over Their Voices To Artificial Intelligence; Deadline, June 25, 2026

 Jake Kanter, Deadline; ‘Peppa Pig’ Causes AI Stink: Concern As Beloved Hasbro Series Asks Child Actors To Sign Over Their Voices To Artificial Intelligence

"Nearly 1,000 people have signed an open letter (copied in full below), organized by the Agents of Young Performers Association (AYPA), condemning AI terms on an “international children’s franchise.”

The open letter does not name Peppa Pig, and the AYPA declined to identify the series, but industry sources told Deadline that it refers to the beloved show.

The letter was also not specific about the clause in question, but theoretically, it could give Hasbro the power to clone a child’s voice and then use the AI-generated audio in Peppa Pig commercial assets.

Hasbro told Deadline that it was committed to protecting child performers, adding that it wished to approach discussions about artificial intelligence responsibly and transparently.

“Consent Must Be Treated With Care”

AYPA members are increasingly concerned about children being asked to effectively surrender their voice and image rights. Agents frequently ask the body for advice on AI clauses without naming specific projects.

The AYPA’s open letter said these clauses are often presented as a “take it or leave it” ultimatum, meaning children can lose out on work if their parents or guardians refuse to agree to the terms."

Sunday, May 4, 2025

‘The Worst Internet-Research Ethics Violation I Have Ever Seen’; The Atlantic, May 2, 2025

 Tom Bartlett, The Atlantic; ‘The Worst Internet-Research Ethics Violation I Have Ever Seen’


[Kip Currier: The indifference and nonchalance of the University of Zurich researchers in this AI study -- who blatantly manipulated the Reddit human subjects without informed consent -- is deeply unsettling.

In the wake of outcries about this research study, the responses of the University of Zurich ethics board are perhaps even more troubling. That board's stated purpose:

"is to “support members of the University in their perception of ethical responsibility in research and teaching“, to “promote ethical awareness within the University” and to “represent ethical issues to the public at large"." 

https://www.ethik.uzh.ch/en/ethikkommission.html 

The words "perception [italics added] of ethical responsibility" should give every researcher and Internet user pause in light of the Zurich ethics commission's providing a Get-Out-Of-Jail-Free card to virtually any of Zurich's researchers with its lack of substantive guardrails and accountability.]


[Excerpt]

"The researchers had a tougher time convincing Redditors that their covert study was justified. After they had finished the experiment, they contacted the subreddit’s moderators, revealed their identity, and requested to “debrief” the subreddit—that is, to announce to members that for months, they had been unwitting subjects in a scientific experiment. “They were rather surprised that we had such a negative reaction to the experiment,” says one moderator, who asked to be identified by his username, LucidLeviathan, to protect his privacy. According to LucidLeviathan, the moderators requested that the researchers not publish such tainted work, and that they issue an apology. The researchers refused. After more than a month of back-and-forth, the moderators revealed what they had learned about the experiment (minus the researchers’ names) to the rest of the subreddit, making clear their disapproval.

When the moderators sent a complaint to the University of Zurich, the university noted in its response that the “project yields important insights, and the risks (e.g. trauma etc.) are minimal,” according to an excerpt posted by moderators. In a statement to me, a university spokesperson said that the ethics board had received notice of the study last month, advised the researchers to comply with the subreddit’s rules, and “intends to adopt a stricter review process in the future.” Meanwhile, the researchers defended their approach in a Reddit comment, arguing that “none of the comments advocate for harmful positions” and that each AI-generated comment was reviewed by a human team member before being posted. (I sent an email to an anonymized address for the researchers, posted by Reddit moderators, and received a reply that directed my inquiries to the university.)

Perhaps the most telling aspect of the Zurich researchers’ defense was that, as they saw it, deception was integral to the study. The University of Zurich’s ethics board—which can offer researchers advice but, according to the university, lacks the power to reject studies that fall short of its standards—told the researchers before they began posting that “the participants should be informed as much as possible,” according to the university statement I received. But the researchers seem to believe that doing so would have ruined the experiment. “To ethically test LLMs’ persuasive power in realistic scenarios, an unaware setting was necessary,” because it more realistically mimics how people would respond to unidentified bad actors in real-world settings, the researchers wrote in one of their Reddit comments."

Tuesday, November 14, 2023

Roland Pattillo helped keep Henrietta Lacks' story alive. It's key to his legacy; NPR, November 14, 2023

 , NPR; Roland Pattillo helped keep Henrietta Lacks' story alive. It's key to his legacy

"Dr. Roland Pattillo and his wife Pat O'Flynn Pattillo paid for Henrietta Lacks' permanent headstone, a smooth, substantial block of pink granite. It sits in the shape of a hardcover book...

Pattillo, an African American oncologist, stem cell researcher and professor, died in May at age 89. His death went largely unreported. The New York Times ran an obituary last month. The Nation published the news in September...

He protected and elevated Lacks' memory for decades. A Louisiana native, Dr. Pattillo is often described as a quiet, determined man, and a major reason why millions know Henrietta Lacks' story.

He befriended the Lacks family and protected them from reporters and other people. He was aware of the HeLa cell line story, the medical discovery that Henrietta Lacks' cancer cells successfully grew outside her body, but he learned more about the donor when he worked with biologist George Gey, his mentor at Johns Hopkins. Gey was responsible for harvesting her biopsied cancer cells and successfully growing them in culture, the first human cells to do so. They were put to use for medical research in labs around the world...

Henrietta Lacks left behind five young children in 1951.

She was treated at Johns Hopkins, a Baltimore charity hospital that cared for Black patients during the Jim Crow era. Her tumor cells were taken without her knowledge. Her cells became the first successful "immortal" cell line, grown outside her body and used for medical research. They have been instrumental in breakthroughs ever since.

Patients rights and the rules governing them were not like today.

HeLa cells were used to understand how the polio virus infected human beings. A vaccine was developed as a result. More recently, they played a significant role in COVID-19 vaccines.

Pat Pattillo says her husband wanted to share how Lacks' gift benefitted humanity since her death at age 31. But he also hoped to extend empathy for the family she left behind...

Skloot says she and Pattillo first had a mentor and mentee relationship, but it blossomed into a collegial one, especially when they formed the Henrietta Lacks Foundation.

"So, it provides financial support for people who made important contributions to science without their knowledge or consent," she says. "And their descendants, specifically people who were used in historic research studies like the Tuskegee syphilis studies, the Holmes Burke prison studies, and Henrietta Lacks family.""

Friday, February 4, 2022

Where Automated Job Interviews Fall Short; Harvard Business Review (HBR), January 27, 2022

Zahira Jaser, Dimitra Petrakaki, Rachel Starr, and Ernesto Oyarbide-MagaƱa, Harvard Business Review (HBR) ; Where Automated Job Interviews Fall Short

"The use of artificial intelligence in HR processes is a new, and likely unstoppable, trend. In recruitment, up to 86% of employers use job interviews mediated by technology, a growing portion of which are automated video interviews (AVIs).

AVIs involve job candidates being interviewed by an artificial intelligence, which requires them to record themselves on an interview platform, answering questions under time pressure. The video is then submitted through the AI developer platform, which processes the data of the candidate — this can be visual (e.g. smiles), verbal (e.g. key words used), and/or vocal (e.g. the tone of voice). In some cases, the platform then passes a report with an interpretation of the job candidate’s performance to the employer.

The technologies used for these videos present issues in reliably capturing a candidate’s characteristics. There is also strong evidence that these technologies can contain bias that can exclude some categories of job-seekers. The Berkeley Haas Center for Equity, Gender, and Leadership reports that 44% of AI systems are embedded with gender bias, with about 26% displaying both gender and race bias. For example, facial recognition algorithms have a 35% higher detection error for recognizing the gender of women of color, compared to men with lighter skin.

But as developers work to remove biases and increase reliability, we still know very little on how AVIs (or other types of interviews involving artificial intelligence) are experienced by different categories of job candidates themselves, and how these experiences affect them, this is where our research focused. Without this knowledge, employers and managers can’t fully understand the impact these technologies are having on their talent pool or on different group of workers (e.g., age, ethnicity, and social background). As a result, organizations are ill-equipped to discern whether the platforms they turn to are truly helping them hire candidates that align with their goals. We seek to explore whether employers are alienating promising candidates — and potentially entire categories of job seekers by default — because of varying experiences of the technology."

Thursday, November 14, 2019

I'm the Google whistleblower. The medical data of millions of Americans is at risk; The Guardian, November 14, 2019

Anonymous, The Guardian; I'm the Google whistleblower. The medical data of millions of Americans is at risk

"After a while I reached a point that I suspect is familiar to most whistleblowers, where what I was witnessing was too important for me to remain silent. Two simple questions kept hounding me: did patients know about the transfer of their data to the tech giant? Should they be informed and given a chance to opt in or out?

The answer to the first question quickly became apparent: no. The answer to the second I became increasingly convinced about: yes. Put the two together, and how could I say nothing?

So much is at stake. Data security is important in any field, but when that data relates to the personal details of an individual’s health, it is of the utmost importance as this is the last frontier of data privacy.

With a deal as sensitive as the transfer of the personal data of more than 50 million Americans to Google the oversight should be extensive. Every aspect needed to be pored over to ensure that it complied with federal rules controlling the confidential handling of protected health information under the 1996 HIPAA legislation."

Thursday, April 5, 2018

Sorry, Facebook was never ‘free’; The New York Post, March 21, 2018

John Podhoretz, The New York Post; Sorry, Facebook was never ‘free’


[Kip Currier: On today's MSNBC Morning Joe show, The New York Post's John Podhoretz pontificated on the same provocative assertions that he wrote about in his March 21, 2018 opinion piece, excerpted below. It’s a post-Cambridge Analytica “Open Letter polemic” directed at anyone (--or using Podhoretz’s term, any fool) who signed up for Facebook “back in the day” and who may now be concerned about how free social media sites like Facebook use—as well as how Facebook et al enable third parties to “harvest”, “scrape”, and leverage—people’s personal data.

Podhoretz’s argument is flawed on so many levels it’s challenging to know where to begin. (Full disclosure: As someone working in academia in a computing and information science school, who signed up for Facebook some years ago to see what all the “fuss” was about, I’ve never used my Facebook account because of ongoing privacy concerns about it. Much to the chagrin of some family and friends who have exhorted me, unsuccessfully, to use it.)

Certainly, there is some level of “ownership” that each of us needs to take when we sign up for a social media site or app by clicking on the Terms and Conditions and/or End User License Agreement (EULA). But it’s also common knowledge now (ridiculed by self-aware super-speed-talking advertisers in TV and radio ads!) that these agreements are written in legalese that don’t fully convey the scope and potential scope of the ramifications of these agreements’ terms and conditions. (Aside: For a clever satirical take on the purposeful impenetrability and abstruseness of these lawyer-crafted agreements, see R. Sikoryak’s 2017 graphic novel Terms and Conditions, which visually lampoons an Apple iTunes user contract.)

Over the course of decades, for example, in the wake of the Tuskegee Syphilis experiments and other medical research abuses and controversies, medical research practitioners were legally coerced to come to terms with the fact that laws, ethics, and policies about “informed consent” needed to evolve to better inform and protect “human subjects” (translation: you and me).

A similar argument can be made regarding Facebook and its social media kin: namely, that tech companies and app developers need to voluntarily adopt (or be required to adopt) HIPAA-esque protections and promote more “informed” consumer awareness.

We also need more computer science ethics training and education for undergraduates, as well as more widespread digital citizenship education in K-12 settings, to ensure a level playing field of digital life awareness. (Hint, hint, Education Secretary Betsy DeVos or First Lady Melania Trump…here’s a mission critical for your patronage.)

Podhoretz’s simplistic Facebook user-as-deplorable-fool rant puts all of the blame on users, while negating any responsibility for bait-and-switch tech companies like Facebook and data-sticky-fingered accomplices like Cambridge Analytica. “Free” doesn’t mean tech companies and app designers should be free from enhanced and reasonable informed consent responsibilities they owe to their users. Expecting or allowing anything less would be foolish.]


"The science fiction writer Robert A. Heinlein said it best: “There ain’t no such thing as a free lunch.” Everything has a cost. If you forgot that, or refused to see it in your relationship with Facebook, or believe any of these things, sorry, you are a fool. So the politicians and pundits who are working to soak your outrage for their own ideological purposes are gulling you. But of course you knew.

You just didn’t care . . . until you cared. Until, that is, you decided this was a convenient way of explaining away the victory of Donald Trump in the 2016 election.

You’re so invested in the idea that Trump stole the election, you are willing to believe anything other than that your candidate lost because she made a lousy argument and ran a lousy campaign and didn’t know how to run a race that would put her over the top in the Electoral College — which is how you prevail in a presidential election and has been for 220-plus years.

The rage and anger against Facebook over the past week provide just the latest examples of the self-infantilization and flight from responsibility on the part of the American people and the refusal of Trump haters and American liberals to accept the results of 2016.

Honestly, it’s time to stop being fools and start owning up to our role in all this."

Monday, March 19, 2018

Where's Zuck? Facebook CEO silent as data harvesting scandal unfolds; Guardian, March 19, 2018

Julia Carrie Wong, Guardian; Where's Zuck? Facebook CEO silent as data harvesting scandal unfolds


[Kip Currier: Scott Galloway, clinical professor of marketing at the New York University Stern School of Business, made some strong statements about the Facebook/Cambridge Analytica data harvesting scandal on MSNBC's Stephanie Ruhle show yesterday.

Regarding Facebook's handling of the revelations to date:

"This is a textbook example of how not to handle a crisis."

He referred to Facebook's leadership as "tone-deaf management" that initially denied a breach had occurred, and then subsequently deleted Tweets saying that it was wrong to call what had occurred a breach.

Galloway also said that "Facebook has embraced celebrity but refused to embrace its responsibilities". He contrasted Facebook's ineffectual current crisis management to how Johnson & Johnson demonstrated decisive leadership and accountability during the "tampered Tylenol bottles" crisis the latter faced in the 1980's.]



"The chief executive of Facebook, Mark Zuckerberg, has remained silent over the more than 48 hours since the Observer revealed the harvesting of 50 million users’ personal data, even as his company is buffeted by mounting calls for investigation and regulation, falling stock prices, and a social media campaign to #DeleteFacebook...

Also on Monday, the New York Times reported that Facebook’s chief security officer, Alex Stamos, would be leaving the company following disagreements with other executives over the handling of the investigation into the Russian influence operation...

Stamos is one of a small handful of Facebook executives who addressed the data harvesting scandal on Twitter over the weekend while Zuckerberg and Facebook’s chief operating officer, Shery Sandberg, said nothing."